Race Archive

By entering the balloon race on the 1^{st of} April, you are helping to ensure we can continue to be there for our young members. 

Shine’s Little Stars programme supports children aged 0-12 years old with spina bifida and/or hydrocephalus, as well as their parents and carers.

Anencephaly is the most severe of a group of conditions known as Neural Tube Defects (NTDs). It happens in about 1 in 2,000 pregnancies in the UK and occurs during the first 28 days of pregnancy when an unborn baby’s brain does not form properly in the womb. Diagnosed by ultrasound at the dating scan, anencephaly is sadly always fatal.

Our aim is to engage, empower and enable all our members to have better lives by helping them to share with others their personal experiences of life with spina bifida.  

Shine provides specialist advice and information to professionals working in healthcare and education. We aim to deepen understanding of spina bifida and hydrocephalus to provide the best possible outcome for our members. 

Shine’s Health Development Team are vital to our approach to supporting our members. 

‘Go Yellow’ for Shine to increase awareness and raise vital funds to support the Hydrocephalus and Spina Bifida communities.  

Shine supports thousands of adults living with spina bifida and/or hydrocephalus, across England, Wales and Northern Ireland.