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Anencephaly is the most severe of a group of conditions known as Neural Tube Defects (NTDs). It happens in about 1 in 2,000 pregnancies in the UK and occurs during the first 28 days of pregnancy. Anencephaly sadley is always fatal. 

Anencephaly Awareness Balloon Race

Shine’s aim is to engage, empower and enable all our members to have better lives by helping them to share with others their personal experiences of life with spina bifida

16th October 2023 Spina Bifida Awareness Week Race

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09
September 2023

Test race 

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We are launching a staff virtual balloon race as part of the September residential. We want you to experience this fantastic fundraising activity. 

2023 Staff Residential Balloon Race 5th September

Shine provides specialist advice and information to professionals working in healthcare and education. We aim to deepen understanding of spina bifida and hydrocephalus to provide the best possible outcome for our members.

4th September Shine's Professional Support Balloon Race

Shine’s Health Development Team are vital to our approach to supporting our 13,000 members.

4th August 2023 Health Development Team Balloon Race

Go Yellow’ for Shine to increase awareness and raise vital funds to support the Hydrocephalus and Spina Bifida communities.  

16th June 2023  Go Yellow  for Shine

Shine supports thousands of adults living with spina bifida and/or hydrocephalus, across England, Wales and Northern Ireland.

12th May  2023 Adult Support Race

Shine’s Folic for Life programme focuses on raising awareness of the benefits of introducing and encouraging the habitual supplementation of folic acid into daily routines.  

Folic for Life Balloon Race April 14th 2023.

By sponsoring a balloon you will be helping us to continue to provide the vital services our members urgently need.  

6th March 2023 Hydrocephalus Awareness Week Balloon Race